aelfie: (Default)
I describe my current weight situation as "I gained all my baby weight back and it brought a few more with it to keep it company."

I haven't been sleeping as well as I could be. I thought maybe it was teething baby. But when I'm sleeping 8 hours a night and still feeling like crap and taking 3 hour naps when I can manage it...something's not right. I know weight changes can affect the pressure needed on one's CPAP. I called Kaiser and set up an appt to get a smart CPAP to see if I needed a new pressure.

Last week I got the machine and 3 new masks to try out. (I'd been complaining of pressure leaks). I returned them and got the results this morning.
My machine was set at 11.5, now its set for 15. And after thinking about it, I've been sleeping less the last few days, but I haven't been feeling sleep deprived.

So not only do I have a new setting, I've got a new mask, and I've got to phone the pediatrician, they want to see Ike and the girls in the sleep clinic. The pediatrician needs to make the referral, but the sleep clinic wants to make sure that, even though Ike got his tonsils removed in December, they want to make sure he's still suffering sleep apnea. Why the girls? Well Gwen needs to have her tonsils out because I KNOW she stops breathing, but if they can fit her with a CPAP and can avoid surgery...I'm all for it. I don't want to have to go through what I did with Ike again.
aelfie: (Sucks to be you)
So last Tuesday, while in the hospital, and after I had only caught a one hour nap after having Gray, the floor midwife came into my room to do a quick after-birth exam. During which, I managed to knock my CPAP to the ground and breaking it.

Okay, semi-breaking it. It became extremely cranky about functioning. But function it did. Or at least well enough to get me through this week when I had a bit of time and energy to deal with it.

After finally getting off my butt Monday morning I called Kaiser and found out that: A. It was still under warranty. B. I could just go to Apria's drop in hours and they would fix it for me.

So Gray and I went for a ride to the north end of San Jose yesterday. Wherein I left 30 minutes after arrival with a brand new CPAP. Which works very nicely. (Okay, we also stopped at my favorite, mulitple resident kitties, used bookstore on the way home too)

Now, I have a different problem. I'm losing weight...and my mask is no longer fitting me correctly. I'm losing seal. And I don't want to keep tightening the straps...its how I gave myself a bunch of headaches last month. So, I need to call Kaiser again, and see about getting fit for a new mask. Yea, I probably could have done that yesterday, but I didn't think about it until about 5AM this morning.
aelfie: (Default)
I ordered a new face mask for my CPAP, clearly stated on the message what manufacturer and model I wanted...and the feebs still sent me THE WRONG MASK! ARRRRGGGGGGHHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!!!!!

At least they got the right type of mask this time and the right size...but there's a big difference between ResMed and Respironics. Grrrr...Now I have 2 extra masks that I don't like. (Hrmmm...I have an extra nasal mask...have to see if Joe likes it...) But still. Grrr!
aelfie: (sleep)
It's 1 something in the morning and I'm wide awake.

Bleh.

This happened last night too. I sleep about 5 hours, somebody disturbs me, I wake up enough to realize I have to go pee, which wakes me up all the way. I'm back to my old sleep patterns, where once I'm up, I'm up. It takes me what seems like an awfully long time to get back to sleep.

I'm starting to reach that stage of its hard to get comfortable to sleep. The fact that I'm sharing my bed with 1-3 extra people just might have something to do with it. It wouldn't be so bad except for the CPAP. I need that thing to sleep, and I'm not sure there's a place I can safely put the dumb thing in Ike's room, else I'd go sleep in his bed.

So I'm up. I'm sore and achy, I'm sleepy, and my nose is running.

Gonna be a long night.

I need to teach the kids to stay in their own beds. I knew I was going to have to...but I wasn't looking forward to it.
aelfie: (Default)
I ordered a new mask for my CPAP on November 7. I finally got the correct one today.

It should not be this damn difficult.

I'm anticipating a night of not having my mask slide off my face.

As soon as the kids who had a long nap go to bed...gonna be a long night.

CPAP Notes

Jun. 2nd, 2008 02:40 pm
aelfie: (sleep)
So I've had my CPAP for 3 weeks...I'm still loving that thing...I'd thought I'd post some notes and troll request some commentary from other CPAP users

So I do need the ramp function. I found that if I just turn it on full blast I spend what seems an inordinate amount of time adjusting, re-adjusting, adjusting as every time I budge I get an air leak. If I use the ramp, I fall asleep before it's blowing full blast and I'm not bothered by air leaks. I think when I fall asleep, I finally relax enough to just let the machine do the breathing thing for me. I find that by morning when I'm coming up from sleep that it feels like its blowing gently, but I seem to be getting plenty of air. Its a strange sensation.

I'm wondering how long it will take me to feel like I'm rested again. Yea, I know, I chase 3 kids all day. I was feeling better for awhile there, and now I feel like I'm dragging all over the place again. I know I'm getting better sleep than I was before the CPAP...I just feel like my body is saying "Hey! I'm fucking tired, you haven't slept well in 5+ years...you need more sleep to make up for what's been lost." I'm wondering if I'm not at the right setting yet. 'Cause it was nice to have some energy there 2 weeks ago, and now I'm back to "let me sit on the couch all day and sit. I'm too tired to move." And my sugar/caffeine cravings seem to be coming back. I liked having energy you know?

I've found that I don't want to sleep without the mask. I could nap on the couch or Joe's Big Red Chair. But I don't want to I want to go to my room, but that silly mask on and blast some air down my throat. Interesting.

This sleep thing is a hell of a lot more complicated than it should be.

Oh...last night Gwen came to bed with me before I went down and while listening to her breathe I noticed...she stops breathing for 10-15 seconds every 5 minutes or so. I think she's coming down with a cold (she seems a bit congested), nonetheless, I'm keeping an eye on it.

aelfie: (sleep)
I now understand why people keep their CPAP masks for YEARS. The loaner I had with the smart CPAP. Fit great. No problems with air leaks. The loaner mask I got with my permanent machine? I'm adjusting this stupid thing multiple times a night. If I strap it on tight enough to prevent air leaks, I end up with pressure marks on my nose, forehead, and chin. It also gives me a headache and I have a canker sore inside my mouth exactly where the edge of the mask hits my mouth. Hurts like hell. I've also discovered what the Dr. meant when she said that some people can have a problem with dryness. Its unpleasant. But I found that the nasal rinsing helps immensely, so I need to get back into the habit of doing that again.

I'm still having problems with constantly having one nostril closed all night long. I am amused that its the other side this week. I'll find out soon if they are going to just rotate on me or just clear up altogether.

I also got my permanent mask in the mail today. Its the wrong size. *face plant* I've called Kaiser to get the right one ordered.

I'm a bit tired today. Elli fell asleep at 6:40 last night and resisted being woken up so I just put her to bed. She woke up at 4:30, tired and cranky as hell and took 90 minutes or so to fall back asleep. I also ended up with a sneezing attack, so I took the mask off, shut the machine down, and slept without it.

I don't like sleeping without my CPAP. I actually have to work at breathing. This sucks! I want a clear nose so I can reap the full benefits of this thing.

And now for the Squee of the day. I just found out that Season 3 of the Muppet show got released...today! W00t! I am so looking for this at Costco.
aelfie: (sleep)
I have my very own CPAP. I made the respiratory therapist laugh when I asked her with a very earnest and pleading look on my face "I get to take one home with me today? Right?"

I did! I have my own little CPAP (man is it small!) and full face mask. The mask is a loaner as they were out of my size, but they will mail one to me. Yea!

I also found out today that Kaiser does not dick around or stint the bene's for CPAP therapy. I am entitled to a new mask and hose...every three months. I need to go in yearly to have my machine either upgraded or just recalibrated. I can call and be fitted for new masks just for the hell of it. How cool is that?

My pressure is set at 11ccm and my initial ramp is set to 7. She said if that isn't enough, bring it in, and she'll adjust it higher for me.

I am looking forward to the next few months and feeling better....Joe is looking forward to me possibly having a sex drive again.
aelfie: (sleep)
Went back to full face mask.

Had 1-1.5 functioning nostrils when I went to bed.

I woke up a couple of times with a dry mouth, and fairly clogged nose. Turn machine off, blow nose, turn back on, go back to sleep.

The kids were really restless last night. Which is rough for Joe and bothersome for me.

I feel like the sleep was good, I just need lots more of it. I feel like I could go back to bed and sleep more.

I also feel like we need to do more training on getting kids to sleep on their own. Its not bad when they crawl into our bed and just sleep (which is what Ike and Gwen pretty much do) but waking up several times is just plain annoying. (But its not like Ike didn't take until 6 months ago to figure this out.)

Overall? Need more sleep.
aelfie: (Default)
Nasal Mask last night. Only had one functioning nostril, despite irrigating it about an hour before bed.

I don't like the nasal mask.

The model they gave me is just a smidge too small. I had a hard time getting to to seal off unless I strapped it very tightly on my head. I have a pressure mark right on the bridge of my nose that is giving me a headache. And it hurts like hell. Even tightly strapped on, if I turned my head without picking up my head from the pillow, my head would rotate in the straps, the mask wouldn't come with me and the seal would break. Vexing. My neck is sore from having to hold it rigidly throughout the night. I also didn't like the feeling in my throat due to the pressure difference between my nose and my mouth, when I opened my mouth to cough or speak, I felt like I was choking. I've got some nasty tension in my jaw which I think comes from the desperate attempt to keep my mouth closed because of that feeling.

So how was the sleep?

Pretty good actually. But the physical aches from the night is killing my groove. Now I just need about a month of it I think before I start to feel better. I think I'm adjusting to it well, I like the being able to breathe thing. I think this experimentation is just going to drive me nuts.

I like the full face much better...that pressure difference is very uncomfortable.
aelfie: (Default)
Used the full face mask again. I only had .5-1 nostril fully functioning.

I slept fine from 11:30(?) to 5 this morning. That was the first time I had to wake up to blow my nose. Then I was up and down from 5 until I got up at 8. It wasn't the nose blowing that was causing a problem. The problem was that the machine kept ramping up the pressure. So I'd fall asleep, 20 minutes later the pressure increased to the point that the mask was literally blowing off my face and breaking seal. I'd have to blow my nose again, reposition, and tighten down the straps. Wash, rinse, repeat for 3 hours. At 8 my back hurt too much to sleep anymore.

So how do I feel? Tired. When I woke up at 5, I felt pretty good. But the three hours of constant adjustment wasn't very restful. My jaw hurts because I had to pull the straps so tight. And I have a headache due to the mask pressing into my face.

I think my sinuses are rebelling at being forced to function. I've had a constant runny nose since I woke up yesterday, that only cleared up after swimming for about 45 minutes. How is the CPAP supposed to get a true reading when its working against clogged sinuses?

Oy.
aelfie: (sleep)
I used the full face mask because I'm stuffed up. I only had one nostril working through the night.

I need either, a shorter ramp period, or higher initial pressure.  Its hard to relax to sleep when I'm feeling like I'm having to work more than usual to breathe. 4mmg just isn't enough to start. That low pressure also makes me feel a bit claustrophobic.

I had to tighten the straps a couple of times in the night as it shifted, but once I got it on good I could sleep on my side without it shifting and thus losing pressure.

Having a runny nose while using one of these things suck. I can't use my usual treatment. Which is stuffing kleenex up my nose to keep it from dripping long enough for me to pass out.

I need to ask what kind of filtration system this thing uses. A really good system would clear up my allergies like the AC does in the car. Or (a new thought) I might be allergic to some material in some component. (I don't do well around some plastics)

Upon waking with a runny nose, DO NOT turn off the machine to blow my nose, with a 45 minute, low pressure ramp, I'm awake for far too long trying to go back to sleep. After doing that ONCE, I just unsnapped it, pushed it to one side, did my thing, then replaced it.

I can actually breathe without effort when this thing is fully going. How cool is that?

Now for the million dollar question. How do I feel this morning?

I feel okay. I feel like I got a better quality of sleep than I usually do. I don't feel like I'm dragging my ass around even though I got up a good 40 minutes earlier than I had to. I just feel like I could use a few more nights with it. Lucky for me, I do!

I was in bed for just over 8 hours, but I was up for a good hour or so around 6. Due to cranky little girls, my runny nose, and the annoying ramp period. So I figure I got a halfway decent amount of sleep. I just need more.
aelfie: (sleep)
Well, I got my Smart CPAP today. I came home with the unit and 3 different masks to try sleeping with over the next week. I have a set of nasal pillows, a nasal mask, and a full face mask (All made by Res-Med). The question I have now is which one do I try first? The one I think I'll hate or the one I think I'll prefer. I HATE shoving things up my nose. So I'm thinking the pillows will just suck. Although I admit while getting fitted this afternoon I found that after the initial few minutes it wasn't that bad. I just had to remember to keep my mouth closed. Which might end up being a problem as I've never been able to breathe fully through my nose. It will be interesting to see how I feel in the morning.

One of the things I found interesting in my fitting today and the lecture I attended on tuesday was how they kept hammering at the recommendation to use a netti pot (or other nasal irrigation system) about an hour before bed. The supervising Doctor admitted that they don't like to use humidifiers. I wonder if they really think its avoidable or if they are just being cheap. I have a kit, and I bought it at the recommendation of my dietician over a year ago 'cause she felt it might work well enough to get me off allergy drugs (which contribute to my fatigue) I've never been able to get into habit of doing it. I know several people who just swear by it...but...um. Its kinda gross, and I don't like the way it runs out of my mouth. Bleh. But if it might help the CPAP work better. What the hell. I can give it a try.

So I have a follow up appointment next thursday where they download the info off the machine and then give me my permanent machine (and I've already looked up [Bad username or unknown identity: allanh*]'s 4 questions I need to ask regarding machines) and my permanent mask. My gram told me that if I end up not liking the machine, to call for an appointment and say that its too noisy and keeps Joe from sleeping. Good thing to know. Then I go back 2 months later for a follow up. I'll ask next week how often I can upgrade my stuff (i.e. masks, hoses, etc)


*Which BTW honey, what are those citrus wipes that you use on your mask? I figure I ought to know this.
aelfie: (call in sick)
So because I blew $5K on Ike's mouth last year, I never made it back to the Dentist like I should have. I finally made it back last month and they decided that I needed "DEEP cleaning" under my gums, under novocaine, with lasers. Bleh. So I got up really early for my 8 AM appt.  (Let us note that I am beyond tired, I am deeply, physically exhausted.) This becomes relevant later. As per usual for new procedures I get...ummmm...worked up. Alright, so I flip out okay? So Gloria started shooting up my mouth with novocaine, a lot of novocaine, and I start to cry. I hate it when I get blubbery for no real reason. And the more exhausted I get, the less control I have over tears.

And as it turned out, it was pretty much for nothing. When they said Deep Cleaning, they meant "We are going to do an old style cleaning with the picks, and then follow it up with a laser pick."  not "we are going to use a laser knife to lay your gums open and scrape out all the dead stuff" The biggest problem is that the novocaine didn't really kick in until she was almost done. I have this wonderful ability I inherited from my Dad to fight off sedation and painkillers. It also takes more of them than usual for any affect. And I metabolize it quicker than usual. (This also makes me a cheap date...one beer and I'm plastered, but I'm sober quick too) So now that I know what the hells going to happen for the next three appts (they split it up into 4 and do 1 quadrant each time), it should go much easier.

I drove home in a daze and collapsed back into bed. Joe was "Wonder Husband" once again, and took the kids to the gym so I could sleep it off. (I also had a really bad night of sleep on top of it) He was back noonish, I took Ike to school and was back here at 2 and the Babysitter was waiting for me. I ran out for some soup and came back home and crashed for another 90 minute nap.

I'm still tired, but the bright light at the end of the tunnel is the fact that sometime next week I should be getting my smart CPAP so I can finally get treated for the sleep apnea.
aelfie: (DDD)
NOT!

So, last month I went to my GP with a laundry list of issues I wanted to talk to her about. One was that I wanted a sleep study. Almost exactly 20 years (and okay I'll admit 60 pounds ago) I was diagnosed with Obstructive Sleep Apnea. I started snoring...loudly, when I was 2. By the time I was 15, my level of sleep deprivation was so bad I'd become narcoleptic. What finally prompted my mother to do something about it, after being reassured by our Dr that everything was fine for years, was the fact that all my teachers called my mother within a week to say that I was falling asleep in their class. Every day. Mom took me to a classmates dad who was an ENT, he took one look in my throat and said "Those are coming right out. How's next week?" He said that my unusually large tonsils and adnoids were causing sleep apena...their removal would fix the problem. After the surgery he told my mom that, not only did I stop the room when I was put to sleep, but I also had the largest T&A he had ever handled.  He had no idea how I'd been able to sleep.

But I digress.

So lately, (read last couple of years) I have been feeling like I did then. I would wake up after 9+ hours of sleep and want to take a nap after a couple of hours...and would take a 3-4 hour nap if circumstances would let me.  And I felt like that I wasn't getting rested. So I asked my Dr for a sleep study. She immediately agreed and I got an appt several weeks later. Which was last week. I went to this stupid Kaiser class where I learned how to put on this wierd arm brace that had two finger thingee's on it. One to measure my oxygen levels and one to track my pulse, plus a computer to record the nights readings.

I got a letter today.

Guess what?

I have sleep apnea! (No shit!) *rolls eyes* 21 episodes per hour according to the results.

So I called to make the first of 3 appts. The first is a class to learn what sleep apnea is, and what causes it. #2 is to be set up with a smart CPAP for a week. #3 is to meet with the Doc and get my Rx and discuss further proceedures. I asked the receptionist if I could skip the class as I was diagnosed 20 years ago, I know all about it. I even had surgery for it. "Why did we do a sleep study if you already knew you have it"
"Because they didn't do sleep studies or CPAP's on 15 year olds back then. They just ripped your tonsils out and sent you home"
"That's a good reason."
"I thought so"

So now I get to join the cool kids and get a CPAP. =) Whee!

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aelfie

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